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[LT-05] De-Identified but Not Gone: Reversible...

[LT-05] You can't contact Patient_001 for a follow-up visit. IRBs now require documented re-identification protocols...

April 19, 20268 min skaityti
research re-identification protocollongitudinal study follow-upIRB pseudonymization requirementcontrolled re-identificationdeterministic encryption

[LT-05]

The IRB Re-Identification Protocol Requirement

IRBs now commonly require researchers to document their re-identification protocol — not just their de-identification method. The documentation must prove two things simultaneously: that the de-identified dataset cannot be re-identified by unauthorized parties, and that authorized re-identification is possible under defined conditions.

This dual requirement reflects the lessons of longitudinal research where clinically actionable findings emer...

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